A group of us were asked by our seminar leader to conduct a self-study and bring together members of our family — on both sides — as far back as possible to compile a comprehensive record of family illnesses, allergies, diseases and anything else relevant to our medical history. Faced with the prospect of our lecturers shortly becoming more knowledgeable about our medical histories than we likely were at that moment in time, almost everyone shrunk in horror. In mere seconds, this reluctance turned to anger; mutinous looks, crossed arms, and the refusal to speak by every student eventually forced the session to end early. We all did the assignment, as we had to for the sake of our degree aspirations. However, we were not happy about it — no matter how enlightening such a study was for our own future health prospects and risks. Why? Due to the deeply personal information we were being asked to reveal to people we did not know beyond the classroom. This scenario came to mind when I read that an EU lobby group dubbed the European http://sandiegosunfire.com/medicalinterview/2016/10/06/some-emerging-guidance-on-essential-elements-for-application-form-for-physician/ Translational Information and Knowledge Management Services (eTRIKS), a collaboration between think tanks, research centers, universities, and pharmaceutical giants such as Pfizer and GlaxoSmithKline, which wants to ‘teach’ and ‘encourage’ UK patients of the National Health Service (NHS) to willingly share their medical data. According to The Register , eTRIKS released the results of a survey conducted by the group which revealed that many NHS patients don’t trust the service with their personal information. In the survey, 16 percent out of 2,000 participants said they did not trust the NHS with their personal data at all, 20 percent were not sure — and only 43 percent of respondents were willing for their medical data to be shared “in the pursuit of research.” In addition, 21 percent said they believed their medical data had been shared without their consent and 38 percent were unsure whether their data had been shared with third parties without their knowledge. These statistics pose a problem for today’s medical scientists who want access to information for research purposes.
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